There are many organisations which offer help to people living with lung disease. Some of these are listed below.

Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis provides information and advice on living with pulmonary fibrosis and runs over 75 support groups around the UK.

01223 785 725

Monday to Friday, 9am – 5pm.

Asthma + Lung UK

The Asthma + Lung UK helpline is there for anyone living with a lung condition. They can give you information about any aspect of living with a lung condition, from going on holiday to how to manage your condition.

0300 222 5800

Monday to Friday, 9am – 5pm.

Cystic Fibrosis Trust

The Cystic Fibrosis Trust helpline lends a listening ear, as well as information and support on any aspect of cystic fibrosis, including financial support such as benefit and welfare grants. 

0300 373 1000 or 020 3795 2184

Monday, Wednesday and Friday, 9.30am – 1.30pm

Tuesday and Thursday, 9.30am – 4.30pm.

Mesothelioma UK

The Mesothelioma UK helpline is staffed by the UK team of clinical nurse specialists and is a national specialist resource centre, specifically for the asbestos-related cancer, mesothelioma.

Freephone 0800 169 2409 or email

Monday to Friday, 8.30am to 4.30pm.

Pulmonary Fibrosis Trust

The Pulmonary Fibrosis Trust provides support to anyone affected by pulmonary fibrosis.

01543 442191

Monday to Friday, 9am – 5pm

Roy Castle Lung Cancer Foundation

The Roy Castle Lung Cancer Foundation’s helpline can answer questions about lung cancer.

0800 358 7200

Monday to Friday, 9am – 5pm

Sarcoidosis UK

Sarcoidosis UK’s helpline is staffed by nurses who have personal or professional experience of sarcoidosis.

020 3389 7221

Call the number or fill out the contact form to schedule a call back.